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    • COST OF LIVING
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    • CENTRES OF EXCELLENCE
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  • More
    • Home
    • About Us
      • What we do
      • The Team
      • Support Coordinators
      • BPS Matters (Newsletter)
      • Testimonials
    • Living with Behçet’s
      • COST OF LIVING
      • BEHÇET’S FACTSHEETS
      • Living well with Behçet’s
      • New Patient Information
      • Children and Young People
      • Help with Benefits
      • Employment
    • Centres of Excellence
      • CENTRES OF EXCELLENCE
      • Centre Contact Details
      • Getting a Referral
      • Feedback
    • Contact Us
  • Home
  • About Us
    • What we do
    • The Team
    • Support Coordinators
    • BPS Matters (Newsletter)
    • Testimonials
  • Living with Behçet’s
    • COST OF LIVING
    • BEHÇET’S FACTSHEETS
    • Living well with Behçet’s
    • New Patient Information
    • Children and Young People
    • Help with Benefits
    • Employment
  • Centres of Excellence
    • CENTRES OF EXCELLENCE
    • Centre Contact Details
    • Getting a Referral
    • Feedback
  • Contact Us

Cost of Living Crisis

COST OF LIVING - LINKS TO USEFUL RESOURCES

SUPPORT COORDINATOR COST OF LIVING INFORMATION 


This is not an exhaustive list of support, but we hope patients find it useful, we will continue to add links to additional support. 


  

GENERAL INFORMATION 

Government Information

https://www.gov.uk/cost-of-living

https://helpforhouseholds.campaign.gov.uk/


Citizens Advice

https://www.citizensadvice.org.uk/debt-and-money/get-help-with-the-cost-of-living/ 


Entitled To

https://www.entitledto.co.uk/help/cost-of-living


Money Saving Expert

(Martin Lewis has a weekly newsletter you can sign up to with lots of useful information and resources).

https://moneysavingexpert.com


Other Sites

https://uk.virginmoney.com/brighter-money/saving-and-budgeting-tips-to-help-with-cost-of-living-crisis/

Also, check your own Local Authority’s webpage for area specific support.


FOOD

Information on reducing your shopping bill.

https://www.bbc.com/news/uk-61798003 


BBC Food Budget Recipes

https://www.bbc.co.uk/food/budget


My First Meals

Grace Mortimer is sharing her £10 weekly family meal plans (based on an Aldi price equivalent shop, on Instagram)

https://www.instagram.com/_myfirstmeals/


Free and Discounted Food Apps

There are some brilliant apps around that help to save food from going to waste. Examples are ‘Too Good to Go’ which allow people to rescue unsold food from restaurants, hotels and shops by collecting Magic bags of food at heavily discounted prices. ‘Olio’ is an app that enables people to give away free food and other items to neighbours to avoid waste. Both apps are available on Android and Apple and there are other similar things around.


Food Banks

If you cannot afford to eat, please do contact your local food bank. Many areas will also have other community support available, and some can also provide energy vouchers also. There are various providers of local food banks. The Trussell Trust is one example. Some local churches run food banks along with other community charities.

https://www.trusselltrust.org/get-help/find-a-foodbank/ 


ENERGY BILLS 

Most utility companies have hardship funds and grants to help customers who are in hardship or arrears. It is also worth registering that you have a chronic illness/disability so that they can add you to their register. Scope have a specific support service for disabled people to help access help with energy and water bills. 

https://www.scope.org.uk/disability-energy-support/ 


WELFARE BENEFITS CHECKS 

Local councils should offer a service to help you check through your benefits and make sure you are not missing out on anything you could be entitled to. Citizens Advice should offer this service also. Most local authorities are also offering cost of living advice. Check their websites. 


EMERGENCY GRANTS ETC 

Lightening Reach

A new one-stop online platform called Lightening Reach allows people in need to receive grants and other support from charities and local authorities and claims it is massively speeding up the process - in some cases cutting the time it can take from several weeks or even months to only a few days. 

https://www.lightningreach.org/application-portal 


Behcet’s UK Members’ Grants

https://behcetsuk.org/personal-grant-aid-fund 


PATIENT INFORMATION

Travel Costs

Travel for hospital appointments if on benefits or a low income 

https://www.nhs.uk/nhs-services/help-with-health-costs/healthcare-travel-costs-scheme-htcs/ 


Prescription Costs

https://www.nhs.uk/nhs-services/prescriptions-and-pharmacies/who-can-get-free-prescriptions/ 

Save money on frequent prescriptions with pre-pay certificates etc.

https://www.nhs.uk/nhs-services/prescriptions-and-pharmacies/nhs-prescription-charges/ 


DEBT 

Free, confidential debt advice is available from a variety of organisations, including this one. 

https://www.stepchange.org/debt-advice-start.aspx 


TV LICENCE 

50% reduction in cost if legally blind (severely sight impaired). 

https://www.tvlicensing.co.uk/check-if-you-need-one/for-your-home/blindseverely-sight-impaired-aud5

 

Other useful information on living with Behçet’s can be found at behcetsuk.org/living-with-behcets/



Rebecca, Jean and Jackie 

Behçet’s Support Coordinators

WORKING IN PARTNERSHIP

Behçet’s Patients Centres

Behçet’s Patients Centres

NHS

Behçet’s Patients Centres

Behçet’s UK

Behçet’s UK

HOW TO CONTACT US

Jean Christians

Jean Christians

Jean Christians

Behçet’s  Support Coordinator (London)

Behçet’s Patients Support 

M:  07804 880655

E:    jean@behcetspatients.org.uk 

Rebecca Hyder

Jean Christians

Jean Christians

Behçet’s Support Coordinator (Birmingham)
Behçet’s Patients Support

M:  07467 945269

E: rebecca@behcetspatients.org.uk

Jacqueline Pooler

Jean Christians

Jacqueline Pooler

 Behçet’s Support Coordinator (Liverpool) 

Behçet’s Patients SupportSupport

M:  07775 645714 

E:  jacqueline@behcetspatients.org.uk 

The  Behçet’s  Support Coordinators are happy to give general advice to all patients with a confirmed or probable diagnosis of Behçet’s but can only provide detailed non-medical support for those patients who attend one of the three Centres of Excellence.

HOW TO CONTACT A CENTRE OF EXCELLENCE

BIRMINGHAM CENTRE OF EXCELLENCE

BIRMINGHAM CENTRE OF EXCELLENCE

BIRMINGHAM CENTRE OF EXCELLENCE

Birmingham Centre 

Helpline  0121 507 4243    

behcetsbham@nhs.net 

LIVERPOOL CENTRE OF EXCELLENCE

BIRMINGHAM CENTRE OF EXCELLENCE

BIRMINGHAM CENTRE OF EXCELLENCE

Liverpool Centre

Helpline  0151 529 8123

behcets@aintree.nhs.uk

LONDON CENTRE OF EXCELLENCE

BIRMINGHAM CENTRE OF EXCELLENCE

LONDON CENTRE OF EXCELLENCE

London Centre 

Helpline  020 3594 6085  

BHNT.londonBEHCETScentre@nhs.net 


Copyright © 2024 Behçet’s Patients Support - All Rights Reserved.


Behçet’s Patients Support is provided by Behçet’s Patients Centres

Company No 8085618 registered in England – Registered Charity No 1148599

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