SUPPORT COORDINATOR COST OF LIVING INFORMATION
This is not an exhaustive list of support, but we hope patients find it useful, we will continue to add links to additional support.
Money Saving Expert
(Martin Lewis has a weekly newsletter you can sign up to with lots of useful information and resources).
Also, check your own Local Authority’s webpage for area specific support.
Information on reducing your shopping bill.
BBC Food Budget Recipes
My First Meals
Grace Mortimer is sharing her £10 weekly family meal plans (based on an Aldi price equivalent shop, on Instagram)
Free and Discounted Food Apps
There are some brilliant apps around that help to save food from going to waste. Examples are ‘Too Good to Go’ which allow people to rescue unsold food from restaurants, hotels and shops by collecting Magic bags of food at heavily discounted prices. ‘Olio’ is an app that enables people to give away free food and other items to neighbours to avoid waste. Both apps are available on Android and Apple and there are other similar things around.
If you cannot afford to eat, please do contact your local food bank. Many areas will also have other community support available, and some can also provide energy vouchers also. There are various providers of local food banks. The Trussell Trust is one example. Some local churches run food banks along with other community charities.
Most utility companies have hardship funds and grants to help customers who are in hardship or arrears. It is also worth registering that you have a chronic illness/disability so that they can add you to their register. Scope have a specific support service for disabled people to help access help with energy and water bills.
WELFARE BENEFITS CHECKS
Local councils should offer a service to help you check through your benefits and make sure you are not missing out on anything you could be entitled to. Citizens Advice should offer this service also. Most local authorities are also offering cost of living advice. Check their websites.
EMERGENCY GRANTS ETC
A new one-stop online platform called Lightening Reach allows people in need to receive grants and other support from charities and local authorities and claims it is massively speeding up the process - in some cases cutting the time it can take from several weeks or even months to only a few days.
Behcet’s UK Members’ Grants
Travel for hospital appointments if on benefits or a low income
Save money on frequent prescriptions with pre-pay certificates etc.
Free, confidential debt advice is available from a variety of organisations, including this one.
50% reduction in cost if legally blind (severely sight impaired).
Other useful information on living with Behçet’s can be found at behcetsuk.org/living-with-behcets/
Rebecca, Jean and Jackie
Behçet’s Support Coordinators
Behçet’s Support Coordinator (London)
Behçet’s Patients Support
M: 07804 880655
Behçet’s Support Coordinator (Birmingham)
Behçet’s Patients Support
M: 07467 945269
Behçet’s Support Coordinator (Liverpool)
Behçet’s Patients SupportSupport
M: 07775 645714
The Behçet’s Support Coordinators are happy to give general advice to all patients with a confirmed or probable diagnosis of Behçet’s but can only provide detailed non-medical support for those patients who attend one of the three Centres of Excellence.
Helpline 0121 507 4243
Helpline 0151 529 8123
Helpline 020 3594 6085